Education of Minority Ethnic Pupils: Young People with Sickle Cell Disease A team of researchers at De Montfort University, University of York and Loughborough University was funded by the Economic and Social Research Council to report on the experiences of young people with sickle cell disorders in the education system in a multi-method study between 2006 and 2011. 

Education of Minority Ethnic Pupils:Young People with Sickle Cell Disease pdf


Professor Simon Dyson on the Experiences of Young People with Sickle Cell at School

The Social and Policy Impact of the Research
The impact this new research project into sickle cell and the issues faced by children at school with the disorder has had both internationally and in the media.

Sickle Cell Influencing Policy
Two members of the team were invited to address the All Party Parliamentary Group (APPG) on Sickle Cell and Thalassaemia (under Dianne Abbott, MP) Portcullis House, Westminster 25th March 2009. A report of the meeting was published from this meeting.

The Social Aspects of Sickle Cell Disease and Thalassaemia in Young People

Two members of the team were also invited to address the Parliamentary Health Committee (under Kevin Barron, MP) Portcullis House, Westminster on 2 November 2009.

A member of the team was invited to speak at the All Party Parliamentary Group (APPG) on Sickle Cell and Thalassaemia House of Commons, Westminster 30th November 2010 in order to brief the newly reconfigured Department of Education on the research findings.

SCOOTER - Sickle Cell Open – Online Topics and Educational Resources
SCOOTER is funded by the UK Higher Education Funding Council for England (HEFCE) as part of their Open Educational Resources (OER) Programme which started in 2009. The OER Programme is run by the Higher Education Academy (HEA) and the Joint Information Systems Committee (JISC).

A website has been created and it contains learning materials for students and teachers all about the medical condition sickle cell anaemia. Sickle cell is a haemoglobin disorder, and last year 2010 marked the 100th anniversary of the first medical paper that described the condition.

Visit for further information.