A mixed-methods study of care involving ICU staff and familymembers for people living with dementia admitted to intensivecare units.
PhD project abstract
The number of people living with dementia has been increasing worldwide and dementia costs billions to the UK economy. The evidence shows that admissions to hospitals for older people diagnosed with dementia have increased near the end of their lives. Due to the current COVID-19 pandemic, people with dementia have limited access to invasive treatments because some healthcare policymakers have recommended that Intensive Care Unit (ICU) admissions to this patient category may worsen their cognitive abilities and physical health. However, there is very little research on the experiences and understanding of care among ICU staff and family members for patients with dementia who undergo ICU hospitalisation.
Aims and objectives
The study aims to gain an understanding of the experiences of ICU staff and family members of patients living with dementia who have been admitted to ICU settings. This study will explore the experiences and understanding of family members and ICU staff about the care of patients who have current or past ICU admission.
A mixed-methods approach, consisting of an exploratory qualitative design using open-ended, face-to-face, or online interviews and a quantitative design adopting two questionnaires, will be used in the study. This study has two phases. The first phase will encompass a qualitative design by interviewing the ICU staff from the Leicester Royal Infirmary (LRI) and Glenfield Hospital, and family/carers of people diagnosed with dementia who have/had been admitted to ICUs in the East Midlands within the last five years. Family members will be recruited through local charity groups. For the qualitative data, 15 to 20 ICU staff and 15 to 20 family members will be interviewed.
The second phase will explore ICU staff attitudes toward people with dementia and explore the perspectives of ICU staff on whether dementia and ICU are compatible. This phase will use two questionnaires: The Approaches to Dementia Questionnaire, and Are Intensive Care and Dementia Incompatible? Questionnaire (AICDIQ). For the quantitative data, questionnaires will be sent to two ICUs in the Royal Infirmary Leicster (LRI) and Glenfield Hospital. In total, there are three mixed medical and surgical ICU beds in LRI, and 3 mixed medical and cardiac ICU beds in the Glenfield hospital. The staff to patient ratio is 1:1, and 1:2 depending on the criticality. A total number of 100 questionnaires will be sent out and a response rate of 55 is anticipated.
The qualitative data will be auto-transcribed if using MS Teams to interview, and face-to-face or telephonic interviews will be transcribed manually. Thematic analysis will be undertaken, and data will be managed using NVivo. The quantitative data will generate descriptive and comparative statistics using the Statistical Package for Social Science (SPSS, version 25).