Job: Professor of Applied Sociology
Faculty: Health and Life Sciences
School/department: School of Allied Health Sciences
Address: De Montfort, University, The Gateway, Leicester, LE1 9BH.
T: +44 (0)116 257 7751
Simon Dyson is Professor of Applied Sociology and is Director of the Unit for the Social Study of Thalassaemia and Sickle Cell at De Montfort University in the United Kingdom.
His research interests include all social aspects of the world’s leading genetic conditions, sickle cell thalassaemia. He has had seven books published, including Ethnicity and Screening for Sickle Cell and Thalassaemia; Sickle Cell and Deaths in Custody (with Gwyneth Boswell) and Genetics and Global Public Health: Sickle Cell and Thalassaemia (with Karl Atkin).
He has written numerous articles on the social and political aspects of sickle cell, including such topics as the politics of racism and sickle cell; the experiences of young people with sickle cell, sickle cell and school education, and sickle cell in Africa. He is a scientific advisor to the UK Sickle Cell Society and has spoken on sickle cell at international conferences in North America, Europe and Africa.
Unit for the Social Study of Thalassaemia and Sickle Cell.
Click here to view a full listing of Simon Dyson's publications and outputs.
BSc(Soc); MPhil; PhD
Chair, Worldwide Initiative for the Social Study of Haemoglobinopathies (WISSH) (2010 - date)
UHL NHS Trust Advisory Committee on Sickle Cell and Thalassaemia (2002 - date)
UK Forum on Haemoglobin Disorders 1995 - date.
Bolanle OLA (Nigeria) Living with Sickle Cell Disease and Depression.
Living with Sickle Cell or Beta-Thalassaemia Trait: Implications for Identity or Social LifeEconomic and Social Research CouncilJanuary 2012 - January 2014. Co-applicantPrincipal Investigator: Professor Karl Atkin (University of York) Collaborators: Waqar Ahmad (Pro-VC Middlesex University); Elizabeth Anionwu (Emeritus Professor, University of West London)
Involving Fathers in Ante-Natal Screening for Sickle Cell Disorders: Improving Informed Decision-Making Research for Patient Benefit (National Institutes for Health)January 2012 - January 2014Co-applicant Principal Investigator: Professor Karl Atkin (University of York)Collaborators: Leeds Clinical Genetics Service, Sickle Cell Society
Sickle Cell Open Online Topics and Educational ResourcesHigher Education Academy/JISCAugust 2010-August 2011Co-applicantPrincipal Investigator: Viv Rolfe (DMU)Collaborators: Mark Fowler (DMU)
Education for Minority Ethnic Pupils: Young People with Sickle Cell DiseaseEconomic and Social Research CouncilSeptember 2006-February 2011Principal Investigator Collaborators: Sue Dyson, Lorraine Culley (DMU); Karl Atkin (York); Jack Demaine (Loughborough)
Editorial board Ethnicity and Health, 2011 - date.
The work of the Unit for the Social Study of Thalassaemia and Sickle Cell has been used by the All Party Parliamentary Group on Sickle Cell at thalassaemia under Dianne Abbott MP at Westminster.The Social Aspects of Sickle Cell Disease and Thalassaemia in Young People.
The Guide to Sickle Cell and School Policy has been used by the Department for Education
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