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DMU and charity launch web page to help women with endometriosis and their partners

A new web page has been launched to support women with endometriosis and their partners thanks to a partnership between a leading national charity and De Montfort University Leicester (DMU).

The new online resource has been created by the Centre for Reproduction Research at De Montfort University Leicester (DMU) and Endometriosis UK, the national charity to support women and all those affected by the disease. Endometriosis UK is also launching new support sessions for couples at locations across the UK.

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Endometriosis is a chronic gynaecological condition which occurs when cells similar to those in the lining of the womb (uterus) grow elsewhere in the body. Women may experience debilitating pelvic pain and painful periods, tiredness, pain during sex, pain when urinating, painful bowel movements and problems with fertility. It can have a huge impact on quality of life

However because there is such a wide range of symptoms, and the impact those symptoms have, many women are misdiagnosed or wait for years before being diagnosed.

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The web page aims to address a lack of online support for women and their partners, and how to cope as a couple before and after a diagnosis. It was produced following a ground-breaking study by DMU, Birmingham City University and the University of Nottingham, which was the first to ask couples how endometriosis impacted on their relationship.

Professor Nicky Hudson, Director of the Centre for Reproduction Research, said: “The evidence from this research suggests that as with many chronic conditions, the management of endometriosis must address the emotional, sexual and relational impact of this disease.

“A more holistic approach to endometriosis management and support is urgently needed.”

Emma Cox, Chief Executive of Endometriosis UK, said: “With a shocking average of 7.5 years delay to get a diagnosis and even access treatment, endometriosis can have a significant impact on all parts of a woman’s life. Women need information, support and understanding about all aspects of the disease, to gain a holistic approach about how best to manage and live with the condition.”

The web page includes information about how the condition affects relationships and offers advice to couples. It also includes a film featuring couples telling their real-life stories and advice from a clinical psychologist.

The materials are aimed at couples and health professionals who want to gain a clearer understanding of some of the issues faced.  

Posted on Wednesday 2nd August 2017

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