Resources for Schools and Parents

Model Policy for Schools

The project team have also consulted with expert health professionals to produce a policy document, highlighting model care of children with sickle cell and thalassaemia at school. This document is now available to download. The policy guide is licensed under Creative Commons (BY-SA).

Sickle Cell and Thalassaemia: A Guide to School Policy

Resources for Schools

As part of the research into sickle cell and the issues faced by children at school who live with the disorder, we have collaborated with Broken Silence, a group of young people living with sickle cell in London, who have drawn on the research to produce posters and leaflets for use in schools.

Booklet for Teachers
Booklet for Pupils

The Sickle Cell Young Stroke Survivors, a support group in Southwark, London, has also produced a booklet for schools looking at strokes and young people with sickle cell in schools.

Sickle Cell and Stroke

The United Kingdom Thalassaemia Society has produced a booklet for schools looking at young people living with thalassaemia, another serious inherited blood condition.

If You Teach a Child with Thalassaemia

Resources for Parents

The NHS Sickle Cell and Thalassaemia Screening Programme has supported the production of a booklet for parents with a child with a sickle cell disorder.

Care and Management of your Child with Sickle Cell Disease

Work with us

Simon Dyson
Professor of Applied Sociology
Room 1.27 Hawthorn Building
De Montfort University
Leicester LE1 9BH
T: +44 (0)116 257 7751