Understanding the impact of service user involvement in cancer research and how it is used.
This research fits in the parameters of anepistemological social science enquiry. It is exploratory by nature and is therefore interpretivist in its approach.
In the last five years a lot of emphasis has been given to service user involvement in health research and its impact. This study is the first of its kind in attempting find out how service user influenced research findings are used to inform practice and policy in the field of cancer research.
There are two phases in this research. Phase one involves conducting 18 interviews with six different service users, six different researchers and different six stakeholders. The interviews with the different people will help to develop an understanding about what meanings are connected to the word ‘impact’ in relation to service user influenced research.
Ultimately how this impact might be demonstrated in policies and practice. Phase two will be using a research approach called a "Delphi Technique".
Delphi Technique is a research method that involves asking questions to experts, usually by email or post.
People in this process will be key opinion formers, people working in the NHS, or perhaps national government run organisations and health think tanks.
Using the Delphi approach is normally helpful in this type of research where knowledge on a topic is limited. The information generated from the interviews will have been pooled together, analysed and themed.
Before starting the Delphi, the themes will be presented in a document. All the people involved in the Delphi will be asked to further refine and consider expanding on the topic.
It is anticipated that by combining interviews and the Delphi technique, data will help develop an understanding about the impact that cancer service user involvement has on cancer research usability.