Presenter: Professor Simon Dyson
Registration information: Please sign up by emailing Sarah-Jo.Lee@dmu.ac.uk.
Intro: The Social Care Learning and Development Hub is very pleased to have Professor Simon Dyson presenting on the issue of sickle cell disease as part of the Twilight Lecture series. The high incidence of the illness within our communities and the problems that those living or caring for someone with it may experience raises important issues for social work across all practice settings. So please do try and come along. There will be time for questions and discussion following Simon’s presentation.
Abstract: Sickle cell disease (SCD) is the most common genetic chronic illness both worldwide and in England. It is a multi-system disorder and raises potentially severe and complex challenges for those working with families caring for a person living with SCD. Such challenges include supporting families around issues such as housing; transport; employment; child protection; young carers; school absence; asylum and mental health. Such challenges are illustrated by through an in-depth consideration of the issues facing parents and children living with SCD in the school environment. The school setting raises challenges including school absence; school triggers to episodes of ill-health; discrimination and lack of understanding on the part of school staff. A Guide to School Policy on Sickle Cell, including suggestions around Individual Health and Care Plans will be introduced by way of conclusion.
Bio: Simon Dyson is Professor of Applied Sociology and is Director of the Unit for the Social Study of Thalassaemia and Sickle Cell at De Montfort University, UK. His research interests include all social aspects of sickle cell and thalassaemia. His books include Ethnicity and Screening for Sickle Cell and Thalassaemia (Elsevier, 2005); (with Gwyneth Boswell) Sickle Cell and Deaths in Custody (Whiting and Birch, 2009) and (with Karl Atkin) Genetics and Global Public Health: Sickle Cell and Thalassaemia (Routledge, 2012). He has written numerous articles on the social and political aspects of sickle cell and thalassaemia. He is a scientific advisor to the UK Sickle Cell Society. He has completed a longstanding research project on sickle cell in schools [http://www.sicklecelleducation.com] and the resulting guide to school policy for sickle cell has been adapted and translated for use in Nigeria, Brazil and Sierra Leone.
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