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Professor Mark Johnson

Job: Professor of Diversity in Health & Social Care

Faculty: Health and Life Sciences

School/department: School of Applied Social Sciences

Address: De Montfort University, The Gateway, Leicester, LE1 9BH.

T: +44 (0)116 201 3906

E: mrdj@dmu.ac.uk

W: www.dmu.ac.uk/msrc

 

Personal profile

Prof. Johnson was the first professor of Diversity in the UK and has established a wide network of researchers developing evidence based practice relating to service provision for populations characterised by ethnic diversity.

His interests include all aspects of research into inequality and diversity in relation to health and care, especially in relation to race/racialisation, ethnicity, religion, language, culture and migration or migrant minority groups, and other elements of diversity equality.

Research group affiliations

Mary Seacole Research Centre, Health Policy Research Unit

Publications and outputs 

Click here for a full listing of Mark Johnson's publications and outputs.|

Key research outputs

A review of evidence to evaluate effectiveness of intervention strategies to address inequalities in eye health care. (Mark R D Johnson, Vinette Cross, Mark O. Scase, Ala Szczepura, Diane Clay, Wesley Hubbard, Keith Claringbull, Philippa Simkiss and Shaun Leamon). RNIB report number CEP/01, 2011.

Adapting smoking cessation, physical activity and nutrition health promotion interventions to meet the needs of UK ethnic minority groups: mixed methods evidence synthesis Final report to NIHR HTA (JJ Liu, E Davidson, RS Bhopal, M White, M Johnson, G Netto, M Devrill and A Sheikh) Submitted to funder June 2011.

Race and Ethnicity in a Welfare Society Open University Press / McGraw Hill (Williams C, Johnson MRD) 2010 - http://www.mcgraw-hill.co.uk/html/0335225314.html

International perspectives on positive action measures: A comparative analysis in the European Union, Canada, the United States and South Africa (PAMECUS Research Consortium – Uduak Archibong, Jite Eferakorho et al) Luxembourg: Office for Official Publications of the European Communities, 2009 (ISBN 978 92 79 11156 3, DOI 10.2767/13963).

Addressing Ethnic Diversity In Health Outcome Measurement: A Systematic and Critical Review of the Literature (Report to NIHR Health Technology Assessment) (Collins G, Johnson MRD 2009) Published on HTA website: http://www.haps.bham.ac.uk/publichealth/methodology/projects/99-52-10.shtml

Beyond We Care Too: Putting Black Carers in the Picture London: Afiya Trust for the National Black Carers & Carers Workers Network (ISBN10: 0 9542288 4 7) 2008 (Editor) (Second Edition July 2009).

Research interests/expertise

All aspects of research into:

  • Inequality and diversity in relation to health and care
  • Especially in relation to race/racialisation
  • Ethnicity, religion, language
  • Culture and migration or migrant minority groups
  • Other elements of diversity equality

Areas of teaching

Postgraduate and occasional lectures on diversity awareness for welfare professionals including:

  • Medical
  • Nursing
  • Occupational therapy students

Qualifications

  • 1967-1970 Pembroke College, Oxford University BA (Hons) in Geography; undivided Class II (MA 1975)
  • 1970-1973 Liverpool University (Dept of Geography) PhD by research, awarded 1977: Innovation Diffusion in Langtang, Nigeria
  • 2008 Warwick University – Postgraduate Diploma in Higher Education
  • February 2007 Fellow of the Institute of Teaching & Learning
  • January 2005- 2014 Honorary Professor of Diversity, Warwick Medical School

Membership of external committees

  • Trustee, The Race Equality Centre, Leicester 2011 – current
  • Trustee, Afiya Trust (National charity) 2008 - current
  • Specialist advisor on Equality & Diversity, NHS Evidence (NICE)
  • Invited Expert member, Diversity Forum (NHS Employers and NHS Equality and Diversity Council) 2011 - current
  • Chair, Leicester Partnership Trust / Wolverhampton University / Association for Real Change study of learning disability and ethnicity “Here to Stay” 2011-2013
  • Member, European Science Foundation Panel of Peer reviewers (2008-2014)
  • Member, international collaboration: The Cultural Issues in End of Life Care Team (PRISMA) Co-ordinated by Centre de Recerca en Salut Internacional de Barcelona (CRESIB)
  • Project Advisory Group Member, Joseph Rowntree Foundation project “Ethnic diversity in UK social science and public policy research: a consultation and development exercise to produce guidelines for sound scientific and ethical practice” 2008-2009
  • Invited Consultation, Children and Young People Health and Social Care Strategy: Department of Health, Department of Children, Schools and Families, Ministry of Justice and Home Office (Equality aspects of health and social care needs of children in the youth justice system) 2009
  • Expert member, EU Committee on Science & Technology (COST) Action IS0603 ‘HOME’: Health & Social Care for Migrants and Minorities in Europe (Working Groups 1-3) and invited expert, WHO Health Promoting Hospitals Task-Force on Migrant Friendly Culturally Competent Healthcare (HPH-TF MFCCH)
  • Member, National Cancer Equalities Initiative (DH National Cancer Action Team) 2008-10: Presentation - Analysis of Equality Projects for National Cancer Action Team Equalities Initiative (Department of Health) London, Dec. 2008
  • Member, Department of Health Organ Donation Taskforce ‘Cultural’ working group 2008-10
  • Steering Group member; Sense Rubella and Minority Ethnic Communities Project 2008-2010

Conference attendance

Invited Keynote Speaker: Marie Curie Foundation Workshop on Ethnicity and End of Life (Palliative) Care – Connaught Rooms, London, 10th April 2013.

‘The future of musculoskeletal health – a facilitated debate & discussion’ (Chair) – at Workshop: Ethnicity, Rheumatology & Musculoskeletal Health (British Society of Rheumatology special interest group), Leicester, Friday 7th December 2012.

Creator/editor, Wikipedia page “ethnicity and health” (originally 2008, revived 2012)

“Achieving Effect for Health & Ethnicity Research” Keynote Speaker, Launch of the ‘West Scotland Health & Ethnicity Network’, University of Glasgow / Scottish NHS, August 2012.

“Communication in cross-cultural cancer care” Nursing Times (nursingtimes.net) 10 August 2012 - http://www.nursingtimes.net/nursing-practice/clinical-zones/cancer/communication-in-cross-cultural-cancer-care/5048153.article?blocktitle=This-Week's-Practice&contentID=4386|

Keynote speaker: the (2nd) Barbara Burford Lecture 'From Tolerance to Celebration: being Positive about Diversity', Making Diversity Interventions Count (annual international conference), Centre for Diversity, University of Bradford - 21st June 2012:
Website http://www.brad.ac.uk/health/CfID/Events/Conferences/conference-documents/ |
Username: diversity
Password: mdicac2012

Chair/Discussant: DMU Care & Compassion Debate on multifaith care – May 2012.

‘Communication in cross-cultural cancer care’: Expert Commentary for NHS Evidence Eyes on Evidence April 2012.

Contributor, Industry & Parliament Trust workshop, Health Inequalities, House of Commons, London April 2012: (Chatham House rule) – see http://www.ipt.org.uk/IPTComment/IPTBlog/tabid/139/EntryId/89/Policy-Event-Report-Access-for-all-to-Healthcare.aspx |

“Four minute lecture” on Diversity and Health, ‘Speakers Step’, Royal visit to DMU Leicester, 8 March 2012.

Workshop Chair: Racism as a public health issue: exploring how we bring the focus back on racial/ethnic inequalities and also begin to develop the concept of intersectionality in understanding and working with inequalities in the context of public health. Afiya Trust Round Table on Public Health and Race Equality, Manchester Jan 2012.

Challenges of Researching Diversity in a European Context: CfID Diversity Challenge Seminar Bradford 19 Jan 2012.

Poster (co-author) poster: Smoking cessation interventions in ethnic minority groups, UK Society for Behavioural Medicine Annual Meeting, Stirling Dec 2011, and also at ADEGS Jan 2012 (annual meeting of the University Departments of General Practice in Scotland) with Cecile Wabnitz, JingJing Liu, Emma Davidson, Aziz Sheikh, Raj Bhopal, Martin White & Gina Netto: also accepted as ‘Behaviour Change in Ethnic Minority Groups - A systematic review of adapted interventions for smoking cessation’ (Wabnitz C, Liu JJ, Davidson E, Bhopal RS, White M, Johnson MRD, Netto G, Sheikh A) for Poster presentation at the IPCRG World Conference, Edinburgh 2012.

Poster presentation: PS12 “The clinical trial ‘Straightjacket’: disservices to minority groups and health inequalities research” (A Szczepura, R Bivins, H Bradby, LF Chiu, N Dogra, K Hawthorne, M Johnson, I Santamaria); Society for Social Medicine Annual Conference, Warwick University Sept 2011.

Presentation (co-author): ‘Evaluation of a ‘Pharmacy First’ Minor Ailment Scheme’ ‘Real world’ experiences of community pharmacists, GPs and practice staff’ (Peter Rivers, Lakhani N, Johnson MRD) Royal Pharmaceutical Society Annual Conference, Sept 2011).

and Sight Loss: Joining the dots VISION 2020 UK Annual Vision Strategy Conference (RNIB) June 2011 London: QE2 Conference Centre: Plenary Stream presentation (invited).

Ethnicity and Vision - Equity in Practice (Low Vision subgroup, Vision2020, 2011 Conference, Sandwell) - Keynote Speaker: “Vision Impairment and Equality” March 2011.

Conferences and Seminars Organised

‘IDEA’ Workshop series, University of Warwick Institute of Advanced Studies, March – June 2011 (Ethnicity Health & Clinical Trials, with Prof Roberta Bivins & Prof Ala Szczepura) Interdisciplinary Development of Ethnicity and Research/Learning/Teaching 12 March, 16 April, June.

Appearance and Diversity Workshop, Appearance Research Consortium, Birmingham 16 July 2009.

Ethnicity and End of Life Care – Consultation Event for General Medical Council, Leicester 15 July 2009.

Cultural Competence in Health & Social Research: Emic & Etic Perspectives (My View or Their View), Seminar 5: ESRC series 'Understanding & Tackling Ethnic Inequalities in Health'. Leicester, 24th April 2006.

Our Vision Too – Workshop on improving access of Visually Impaired people from Black and Minority Ethnic Groups to appropriate services; Thomas Pocklington Trust / Housing Corporation – RNIB, Birmingham, February 2005.

EUMIDON - ESF International Workshop on Minority Migrants and Human Tissue Donation / Transplantation; Birmingham, September 2004 http://www.esf.org/generic/1925/03017Report.pdf |

Current research students

  • Carlton Howson – retention & widening participation: Black students in social work training (2nd)
  • Naomi Watson – Recruitment of minority students into nurse education
  • Aveen Haji Mam – Interventions to reduce obstetric complications in obese Kurdish mothers (2nd)
  • Jan Cambridge – Interpretation in the mental health consultation (Warwick Med School) (revising following Viva: Minor corrections)
  • Sukvinder Bhamra – South Asian traditional medicines (Pharmacy, 2nd).

Externally funded research grants information

  • 2012 NIHR Programme Development Grant with Lorraine Culley, Dr Marian Carey National Director: DESMOND Programme (UL/ LRI) et al. - embedding structured (Diabetes) education in routine care (Awarded Oct 2011) (joint PI)
  • 2012 - 13 THEREM (Theracom) Therapeutic Communications in Black and Minority Ethnic Populations: a synthesis of the evidence base – NIHR (HTA Programme HTA/10/141) with Profs Kam Bhui & Rose McCabe (QMUL), Ala Szczepura, Swaran Singh and Scott Weich (Warwick), CoApp (Awarded Aug 2011)
  • 2011-12 ARCEED Delivery of a layered and culturally appropriate electronic educational resource on Osteomalacia, for ethnic minorities –Arthritis Research UK (Charity) with Dr Ade Adebajo (Sheffield) Co-app: £101,238 total (AWARDED JUNE 2011) (CI)
  • 2010/11 FRAHIN Fundamental Rights Agency (EU) – Part of Consortium Tender to investigate Intersectional discrimination in Health across Europe “Study on Inequalities and Multiple discrimination in access to health – five nation study” (Tender D/SE/10/09, Scientific Coordinator, in team led by Prof E Kofman, Middlesex University (up to 430,000 Euros) (PI)
  • 2010 STROCARE Carer Strain in people living with after effects of stroke, in BME communities (with Leicester University Hospitals and University of Leicester CLAHRC) (CI)
  • 2010 ASTHMAS – Asthma UK Grant for systematic review of the barriers and facilitators to achieving asthma control in children of ethnic minority groups (with MIA team – see below) Appx £27,000. CI
  • 2010 Vision5: Review of Interventions to increase uptake and concordance/retention of marginalized at risk groups in relation to eye health screening to prevent avoidable sight loss. £29,400. RNIB (Royal National Institute of Blind People) (with Dr Mark Scase, DMU) PI
  • 2010 Vision4: BME Volunteering and self-help project, Action for Blind People / DH S64 grant. £23,000. Evaluation and research support for DH funded project in East Midlands PI
  • 2010 MIA – NIHR Health Services Research programme: HSR 09/2001/19: The use of a collaborative structured methodology for the development of a multifaceted intervention programme for the management of asthma, tailored to the needs of children and families of South Asian origin (PI: Dr Monica Lakhanpaul, University of Leicester; Co-investigators Prof. Lorraine Culley (DMU) Dr Deborah Bird (UL) Mrs Narynder Johal (Lay). Mark Johnson (DMU) Mrs Melanie McFeeters (LRI) Mrs Joanne Wilson (LPCT) )
  • 2010 National Cancer Equality Initiative / NCAT (CANEPO) – development of repository of good practice (PI). approx £5,000
  • 2010 IOM PHBLM Evaluation – International Organization for Migration (Brussels)5,000 euros plus expenses 
Review of materials for training border control staff in public health and migration, PI
  • 2010 STROCARE – Leicester CLAHRC – Carer Strain in Ethnic Minorities with Stroke(collaborating: no details as yet on funds etc)
  • 2009 Department of Health – national Pacesetters Equalities Data Projects Evaluation. £20,000 (CONTRACT WITHDRAWN/CANCELLED DUE TO BUDGET CUTS). Evaluation of national improvement projects (PI)
  • 2009 General Medical Council – End of Life Consultation (Ethnicity aspects) £2,000 (approx). Organisation of a workshop (PI)2008-10 HTA (MRC) With Edinburgh University Medical School: HTA Project 07/63/03 - Modifying health promotion interventions to meet the needs of ethnic minority groups Collaborating Investigator (named on grant)
  • 2008 The Healing Foundation (Appearance Research Consortium) – ‘BME Substudy’ £2,000. Extension to major study by ARC Consortium (University of West of England, Warwick University, and others) to explore issues around ‘disfigurement’ among BME communities PI
  • 2008 NHS Institute – NHS Library for Health (now NHS Evidence, National Institute for Health & Clinical Excellence).Approx £ 180,000 3-year (renewable) contract to provide the NHS Specialist Library for Ethnicity & Health PI: joint with Warwick University
  • 2008 NHS Pacesetters programmeApprox £ 80,000. Evaluation of East Midlands implementation of the national PaceSetters programme (PI)

Internally funded research project information

  • 2010 RIF2 (DMU) Assistive living Collaborative Research Network (with Andrew Hugill, Son g Cheng et al, DMU
  • 2010 Workshop series on Food, Oral Health and Social Interaction, Warwick University Institute for Advanced Studies Incubation Fund (£2,572)

Professional esteem indicators

Reviewer for various Publications and Research Funders:

  • Steering Group member, ‘LISA’ project, Social Policy Research Unit, University of York (Living with Inflammatory Bowel disease – experiences of adults of South Asian origin) – Crohns & Colitis UK (Charity) 2012-14
  • Advisory group member of Equality Challenge Unit (ECU) project around supporting staff and students in Higher Education experiencing mental health difficulties (2013)

Examinerships:

Invited External Examiner, University of Birmingham Medical School, Manbinder Sidhu ‘Understanding health beliefs in relation to chronic disease and self-management in a socio-economically disadvantaged multi-ethnic population’ (PhD) 2012

External Examiner, University of Loughborough, Shena Taylor, ‘Communication Barriers in health care’ (PhD) 2012

Founding Editor (joint) Diversity in Health & Social Care Quarterly Journal (Radcliffe Medical Press) from Sept 2004 (from Jan 2009, Vol 6,1; Diversity in Health & Care – continues

International Editorial Board: Ethnicity & Health (Taylor & Francis/Routledge) (since journal commenced to present)

Reviewer for Journals & Publishers

  • 2012 Journal of Palliative Medicine
  • 2012 Public Health
  • 2012 Ethnicity & Health
  • 2011 Public Library of Science One (PLoS One)
  • 2011 European Journal of Public Health
  • 2011 Special Issue of Psychological Issues in Organizational Culture (JPOC)
  • 2011 Diabetic Medicine
  • 2011 Journal of Public Health
  • 2011 BioMed Central BMC Nursing
  • 2011 BioMed Central BMC Health Services Research
  • 2011 European Society for Social Drugs Research ‘yearbook of research’ (chapter on ethnicity and drugs)
  • 2011 COMPAS (Oxford) Working Paper series (Migration health)
  • 2010 Primary Care Respiratory Journal
  • 2010 Voluntary Sector Review
  • 2010 Qualitative Health Research (Utah)
  • 2010 British Journal of Cancer
  • 2009 British Journal of Health Psychology
  • 2009 Ethnicities
  • 2009 PloS - Medicine

Refereeing and Reviewing Research:

  • 2011 Government of Cyprus Research Promotion Foundation (project grant)
  • 2011 The Netherlands Organisation for Health Research and Development (ZonMw) scientific TOP programme
  • 2011 Cancer Research UK (NCAT)
  • 2010 NIHR RfPB
  • 2010 Prostate Cancer Charity Project Grant
  • 2010 Scottish Office Health Research Grants
  • 2009 NHS Health Technology Assessment Programme: Member, ‘College of Experts’
  • 2009 Research for Patient Benefit programme
  • 2008-9 ESRC/MRC Joint Studentships & Fellowships competition

Case studies

  • Currently devising REF 2013 report on Sight Loss research impact
  • Contributor: ‘Pregnancy and complex social factors’: A summary of selected new evidence relevant to NICE clinical guideline 110 ‘A model for service provision for pregnant women with complex social factors’ (2010) Evidence Update London: NHS Evidence / NICE January 2012
  • Contributor: Afiya Trust Submission to NHS Future Forum on the review of the NHS Bill (June 2011)
  • Evaluation Report (for International Organization for Migration and European Commission DG-SANCO): Increasing Public Health safety alongside the New Eastern European Union Border Line (PHBLM) May 2010
  • Evaluation report: ‘Community View’ Visual Impairment project – Focus Birmingham and Big Lottery (with F Guo) August 2009
  • Improving ethnic data collection for statistics of cancer incidence, management, mortality and survival in the UK Warwick Medical School report to Cancer Research UK (Iqbal G, Gumber A, Szczepura A, Johnson MRD, Wilson S, Dunn JA) 2008
  • Invited Presentation, UK Department of Health's Eye Care Strategy Group (May 2010)
  • Member, international collaboration: The Cultural Issues in End of Life Care Team (PRISMA) Co-ordinated by Centre de Recerca en Salut Internacional de Barcelona (CRESIB).
  • Project Advisory Group Member, Joseph Rowntree Foundation project “Ethnic diversity in UK social science and public policy research: a consultation and development exercise to produce guidelines for sound scientific and ethical practice” 2008-2009
  • Invited Consultation, Children and Young People Health and Social Care Strategy: Department of Health, Department of Children, Schools and Families, Ministry of Justice and Home Office (Equality aspects of health and social care needs of children in the youth justice system) 2009
  • Expert member, EU Committee on Science & Technology (COST) Action IS0603 ‘HOME’: Health & Social Care for Migrants and Minorities in Europe (Working Groups 1-3) and invited expert, WHO Health Promoting Hospitals Task-Force on Migrant Friendly Culturally Competent Healthcare (HPH-TF MFCCH)
  • Member, National Cancer Equalities Initiative (DH National Cancer Action Team) 2008-10: Presentation - Analysis of Equality Projects for National Cancer Action Team Equalities Initiative (Department of Health) London, Dec. 2008
  • Member, Department of Health Organ Donation Taskforce ‘Cultural’ working group 2008-10
  • Steering Group member; Sense Rubella and Minority Ethnic Communities Project 2008-2010
  • Trustee, Afiya Trust (appointed 2008)
  • Development of new Module NRMW3020 for DMU School of Nursing & Midwifery Advanced Diploma (Using Evidence to Examine Practice) – Team member
  • Chair, Warwick South Asian Group ‘Science Health & Society’ Workshop “South Asians and reproductive Health” Warwick University, 16 April 2008

Or more specifically on ‘advice:

  • 2010 GMC ‘Users’ implementation panel – End of Life Care guidance
  • 2010 Asked for advice on language competency patterns for the Switchover Help Scheme (BBC)
 Mark Johnson

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