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Dr Jutlla Karan

Job: Lecturer in Health and Social Care

Faculty: Health and Life Sciences

School/department: School of Nursing and Midwifery

Address: De Montfort University, The Gateway, Leicester, LE1 9BH

T: 0116 250 6268

E: karan.jutlla@dmu.ac.uk

W:

 

Personal profile

Dr Karan Jutlla is a Lecturer in Health and Social Care with extensive experience within the field of dementia. As well as teaching on a number of programmes across the faculty at DMU on dementia her specialist research area is within ethnicity and dementia which led her to completing a doctoral study at Keele University.

Her doctoral study researched experiences of caring for a family member with dementia for Sikhs living in Wolverhampton of the UK. This biographical study highlighted challenges with access to, and experience of, health and social care services in the UK - with such experiences being strongly linked to their experiences as migrants in the UK.

Her study underlined the need for care to be person centred as well as culturally competent. Based on her research findings, Karan has developed and delivered bespoke dementia education programmes to support services to be culturally competent as part of her previous role as a Senior Lecturer in Dementia Studies at the University of Worcester.  

Having worked with one of the UK’s leading private domiciliary care organisations to develop their dementia education programmes, Karan is experienced in helping the workforce to understand the wider needs of different cultural groups whilst maintaining a person centred approach. She is a Fellow of the Higher Education Academy.

Karan has also engaged in research to further address dementia care in ethnic minorities and as well as service and education evaluation projects. Karan is a qualitative researcher by background with a particular interest in grounded theory.

She has peer reviewed a number of articles and funding applications for the Alzheimer’s Society. She has also been involved on a number of research bids focusing on dementia and the impact of dementia on those living with the condition.

She has presented her findings at a number of national and international conferences including UK Dementia Congress and Age UK and was invited as a keynote speaker at the 17th South Asia Pacific Conference of the Alzheimer’s Disease International in New Delhi.

Research group affiliations

  • Mary Seacole Research Centre
  • Nursing and Midwifery Research Centre

Publications and outputs 

  • Jutlla, K. (2015). Dementia and Caregiving in South Asian Communities. In Botsford, J. & Harrison Denning, K. Dementia, Culture and Ethnicity: Issues for All. Jessica Kingsley: London, pp. 107-126.
  • Hossain, M. Z. Dewey, A. Hakak, Y. & Jutlla, K. (July 2014). Understanding dementia among the Bangladeshi community in England. Alzheimer's & Dementia: The Journal of the Alzheimer's Association. Vol. 10, No. 4, pp. 762–P763
  • Jutlla, K. (2014). The impact of migration experiences and migration identities on the experiences of services and caring for a family member with dementia for Sikhs living in Wolverhampton, UK. Ageing and Society, Vol. 35, No. 5, pp. 1032-54. doi:10.1017/S0144686X14000658
  • Jutlla, K. & Lillyman, S. (2014). An Action Research Study Engaging in the Use of Storyboarding as Research-based Teaching to Identify Issues Faced when Working with People with Dementia from Minority Ethnic Communities. Worcester Journal of Learning and Teaching. Issue 9, pp. 23-35.
  • Jutlla, K. (2013). Cultural Norms About the Roles of Older People in Sikh Families. In Singh, A. (Ed). Indian Diaspora Voices of Grandparents and Grandparenting, Sense Publishers: Boston
  • Jutlla, K. (2013). Ethnicity and Cultural Diversity in Dementia Care: A Review of the Research. Journal of Dementia Care. Vol. 21, No. 2, pp. 33-39.
  • Jutlla, K. Parsons, M. Coaten, R. Gardiner, L. & Brooker, D. (2013). Capturing progress in creative arts and dementia. Journal of Dementia Care. Vol. 21, No.1, pp. 26-28.
  • Jutlla, K. Graham, S. & Jolley, D. (2012). The care of older people with dementia and other mental disorders when they are admitted to General Hospitals: learning from a network of Mental Health Liaison teams. The Journal of the Institute of Ageing and Health (West Midlands). Vol. 1, No. 18, pp. 29-30.
  • Jutlla, K. (2010). Migration and Asian communities; understanding migrant Sikh carers caring for an older person with dementia in Wolverhampton. Generations Review. 20 (3). Available at: http://www.britishgerontology.org/DB/gr-editions-2/generations-review/migration-and-asian-communities-understanding-migr.html
  • Kaur, H. Jutlla, K. Moreland, N. & Read, K. (2010). How a link nurse ensured equal treatment for people of Asian origin with dementia. Nursing Times. 106 (24), pp. 4-9.
  • Jolley, D. Moreland, N. Read, K. Kaur, H. Jutlla, K. & Clark, M. (2009). The ‘Twice a Child’ Projects: learning about dementia and related disorders within the black and minority ethnic population of an English city and improving relevant services.  Journal of Ethnicity and Inequalities in Health and Social Care. 2 (4), pp. 4-9.
  • Jutlla, K. & Moreland, N. (2009). The personalisation of dementia services and existential realities: understanding Sikh carers caring for an older person with dementia in Wolverhampton. Journal of Ethnicity and Inequalities in Health and Social Care. 2 (4), pp. 10-21.
  • Jutlla, K. & Moreland, N. (2007). Twice a Child III: The Experiences of Asian Carers of Older People with Dementia in Wolverhampton. Fordementiaplus, West Midlands. Available at: http://www.dementiauk.org/assests/files/info_and_support/docs_and_reports/twice-a-child-3.pdf

Key research outputs

  • Jutlla, K. (2015). Dementia and Caregiving in South Asian Communities. In Botsford, J. & Harrison Denning, K. Dementia, Culture and Ethnicity: Issues for All. Jessica Kingsley: London, pp. 107-126.
  • Jutlla, K. (2014). The impact of migration experiences and migration identities on the experiences of services and caring for a family member with dementia for Sikhs living in Wolverhampton, UK. Ageing and Society, Vol. 35, No. 5, pp. 1032-54. doi:10.1017/S0144686X14000658
  • Jutlla, K. (2013). Cultural Norms About the Roles of Older People in Sikh Families. In Singh, A. (Ed). Indian Diaspora Voices of Grandparents and Grandparenting, Sense Publishers: Boston.
  • Jutlla, K. (2013). Ethnicity and Cultural Diversity in Dementia Care: A Review of the Research. Journal of Dementia Care. Vol. 21, No. 2, pp. 33-39.
  • Jutlla, K. & Moreland, N. (2009). The personalisation of dementia services and existential realities: understanding Sikh carers caring for an older person with dementia in Wolverhampton. Journal of Ethnicity and Inequalities in Health and Social Care. 2 (4), pp. 10-21.

Research interests/expertise

  • Ethnicity and cultural diversity in dementia care
  • Arts and creativity in dementia care
  • Domestic violence in South Asian communities
  • Alcoholism in South Asian communities
  • Workforce development: transferring skills into practice

Areas of teaching

  • Person-centred dementia care
  • Neurological impairment in dementia
  • Ethnicity and cultural diversity in dementia care
  • Arts and creativity in dementia care
  • Advanced Communication and assertiveness
  • Qualitative research methods and Grounded Theory

Qualifications

  • BSc (Hons) Health Sciences, University of Salford
  • Doctor of Philosophy, Keele University
  • Postgraduate Certificate in Higher Education, University of Worcester

Membership of professional associations and societies

 

  • British Society of Gerontology
  • Emerging Researcher’s Association    
  • Fellow of the Higher Education Academy        
  • IINTERDEM: European Network of researchers for early detection and timely INTERvention in DEMentia

 

Conference attendance

 

  • Jutlla, K. 7-9 Nov 2006 UK Dementia Congress – Bournemouth. Presentation of previous research undertaken (TACIII) and forthcoming research (PhD).
  • Jutlla, K. 25 Apr 2007. Twice a Child III Launch Event, Dr. Ambhedikar Memorial Centre, Wolverhampton
  • Jutlla, K. 10-11 May 2007. Primary Care Conference 2007 – NEC Birmingham. Presentation of previous research undertaken (TACIII) and forthcoming research (PhD).
  • Jutlla, K. 6-8 Sep 2007 BSG Conference, Sheffield. Paper presentation (PhD) “Migration and Asian Communities: understanding Sikh carers caring for an older person with dementia in Wolverhampton – a complex issue.”
  • Jutlla, K.5-9 Nov 2007 UK Dementia Congress – Harrogate The Personalisation of Dementia Services and Existential Realities: Understanding Sikh carers caring for an older person with dementia in Wolverhampton. Co-presented with Dr. Neil Moreland.
  • Jutlla, K. 18 Feb 2008. The Memory Clinic Networking Meeting. Presentation: Insights on dementia and needs for services in BME Elders from the ‘Twice a Child’ studies.
  • Jutlla, K. 14-15 May 2009. ERA conference, Cardiff. Paper presentation Researching migration experiences and personal histories of the Sikh Community in Wolverhampton: an insider’s perspective.
  • Jutlla, K. 2-4 Sep 2009.BSG conference. Paper presentation Migration and Asian Communities: Understanding migrant Sikh carers caring for an older person with dementia in Wolverhampton.
  • Jutlla, K. 5 Mar 2010. Old Age Forum, Wolverhampton. Presentation: The Twice a Child Research Projects and Theorising Carers.
  • Jutlla, K. 11 Oct 2010. Memory Clinic Conference, Wolverhampton. Presentation of the findings of my PhD.
  • Jutlla, K. 5-7 Jul 2011. BSG Conference: Paper Presentation. A biographical approach for carers of people with dementia: the Sikh Community in Wolverhampton.
  • Jutlla, K. 15 Jul 2011. Ethical Dilemmas in End of Life Care for people with dementia Conference: Presentation.  Cultural considerations and ethical dilemmas in end of life care for people with dementia.
  • Jutlla, K. 1-3 Nov 2011. UK Dementia Congress, Liverpool. Chaired session:  People with dementia from ethnic minorities.
  • Jutlla, K. 3 Oct 2011. University of Sheffield: Public Seminar. Caring for a person with dementia: a qualitative study of the experiences of the Sikh community in Wolverhampton.
  • Jutlla, K. 9 Dec 2011. ERA Conference, Keele University: Presentation. Caring for a person with dementia: a qualitative study of the experiences of the Sikh community in Wolverhampton.
  • Jutlla, K. 6 Feb 2012. National University of Ireland, Galway: Public Seminar. Ethnicity and Cultural Diversity in Dementia Care: A person-centred approach.
  • Jutlla, K. 9 Mar 2012. Alzheimer’s Disease International, ExCeL London: Presentation.  A qualitative study of the experiences of Sikh carers of people with dementia in Wolverhampton, UK: The need for a person-centred approach to care.
  • Jutlla, K. 25 Jun 2012. Institute of Ageing and Health, West Midlands. Birmingham Medical Institute. Presentation. Evidence-based Practice: Working Collaboratively to make person centred dementia care a reality.
  • Jutlla, K. 11-13 Jul 2012. BSG Conference. Symposium presentation: A qualitative study of the experiences of Sikh carers of people with dementia in Wolverhampton – cultural norms and positions in the family.
  • Jutlla, K. 6 Sep 2012. Voices and vision in creative therapies in dementia Conference. The Association for Dementia Studies and The Society for the arts in Dementia Care. Presentation: Ensuring voices are heard and visions are seen. Co-presented with Maria Parsons (Director, Creative Dementia Arts Network).
  • Jutlla, K. 12 Sep 2012. Dementia Conference – Creative Expression in Dementia Care using the Arts. Lancashire Workforce Development Partnership. Invited keynote speaker: Why creative therapies are important for people with dementia.
  • Jutlla, K. 20 Mar 2013. AgeUK Conference, Birmingham. Invited keynote speaker: Ethnicity and Cultural Diversity in Dementia Care: A Person-centerd Approach.
  • Jutlla, K. 5 June 2013. Journal of Dementia Care Community and Technology Conference. Ethnicity and cultural diversity workshop
  • Jutlla, K. 20 June 2013. University of Worcester Learning and Teaching Conference. Using a storyboarding technique to identify current issues and challenges for those working with people with dementia from minority communities: The case for a positive link between teaching and research.
  • Jutlla, K. 2 Sep 2013. Dementia Action Alliance Quarterly meeting, London: Invited speaker: Making services more culturally competent: a Person-centred approach.
  • Jutlla, K. 23 Oct 2013. Memory Services National Accreditation Program (MSNAP) Forum, Sheffield: Invited speaker. Person-centred dementia care: promoting cultural competency within existing services.
  • Jutlla, K. 30 Oct 2013. ESRC Seminar Series, SOAS London: invited speaker. Making services more culturally competent for BAME older people: a person-centred approach 
  • Jutlla, K. 19 Nov 2013. Swindon CCG. Workshop: Making services more culturally competent.         
  • Jutlla, K. 26 Mar 2014. EFID workshop, Brussels, invited keynote speaker. Making services more culturally competent: A person-centerd Approach.
  • Jutlla, K. 1 Apr 2014. ESRC Seminar Series. Brunel University: Promoting Cultural Competency in Dementia Care: a Person-Centred Approach.
  • Jutlla, K. 22 – 24 Oct 2014. Alzheimer’s Europe Glasgow. Presentation: Working with migrant communities: achieving cultural competency in dementia care via a person centred approach.
  • Jutlla, K. 8 Nov 2014. The 17th South Asia Pacific Conference of the ADI, New Delhi. Invited keynote speaker: Promoting Cultural Competency in Dementia Care: a Person-Centred Approach.
  • Jutlla, K. 13 Nov 2014. Dementia Action Alliance Webinar: Promoting Cultural Competency in Dementia Care: a Person-Centred Approach. 
  • Jutlla, K. 15 Apr 2015. “I’m Fine” Seminar: Domestic Abuse in South Asian Communities. Guest Speaker.
  • Jutlla, K.  23 May 2015. Care Mark India, Kerala, India: Workforce Development in Dementia Care. Guest Speaker.
  • Jutlla, K. 14 July 2015. Working with Migrant communities: Achieving cultural competency in dementia care, MSNAP, London.
  • Jutlla, K. 15 July 2015. Leading Person Centred Dementia Care, Care Mark Mid-Year Event.

 

Case studies

  • Dr Karan Jutlla contributed to a Joseph Rowntree Foundation project exploring women's experiences of dementia, which provided a platform to highlight some of the issues faced by South Asian women caring for a family member with dementia, particularly daughters-in-law who quite often remain hidden from services. You can read Karan's blog about this at http://www.dementiawomen.org.uk/opus44.html.

  • In 2013, the All Party Parliamentary Group published the report 'Dementia does not Discriminate' about the experiences of people from BAME communities, with seven recommendations being suggested for helping people with dementia and their families from BAME communities to live well. Dr Karan Jutlla previously led this area of work at the Association for Dementia Studies at the University of Worcester and had her work featured in this influential parliament report. To read about this, visit: http://www.worcester.ac.uk/discover/university-of-worcester-lecturer-recognised-in-influential-dementia-care-report.html

  • Karan also featured in the video Race and Dementia - 'Dementia doesn't care about the person. We should.' This was produced by the Runnymede Trust and published in November 2013. The film explores the double discrimination and how the current system fails to address the unique issues faced by BAME people with dementia. The film is part of the 'End Racism This Generation' campaign, which calls on individuals and organisations to make change in their own lives, workplaces and communities to tackle racism. You can see this video at: https://www.youtube.com/watch?v=FKjtO4WiPvM

  • On 24th April 2015, Karan was invited to ITV Central studios for a live interview about her views on domestic violence in South Asian communities. You can see her ITV News interview at: http://www.itv.com/news/central/update/2015-04-24/why-domestic-abuse-hidden-in-south-asian-community/
Dr Karan Jutlla

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